So I don't really even know how to begin this thing or how to explain. So I'll start back on this past Monday.
I was 18 weeks and 3 days along on Monday and we were thinking Bradley was gonna go back on the road and work on some more power plants. I really wanted to find out before he left what we were going to have, so I talked to my doctor and she made an exception to let us find out what we were going to have that day.
We went in the ultra sound room and found out that we are going to have a little girl. Which was good. We really didn't care what we were having since we have both, boy and girl.
Anyways she got done with the ultra sound and said just a second and I'll see if she needs anything else. Dr. Meents (my doctor) then comes in and sits down with us and tells us "the reason I'm in here is we found some problems wrong with you baby."
My heart sunk and I could just feel my face turning red. In simple words She told us that some of her organs were growing on the outside of her and there was some fluid on her brain. I broke down crying uncontrollably and thank goodness Bradley was there to comfort me. She told us we needed to go see a specialist in Springfield to tell us more about the problem though. So we went home not knowing exactly what was going on. She did tell us it could be life threatening or she could have birth defect but we just wont know until we see someone else.
I went home and got a blessing from my dad and Bradley that afternoon and felt tons better and comforted. And we also had a good Family home evening with my family on special children and how miracles do happen. And we listened to a talk at the last priesthood session by Elder Oaks.
So today Wednesday we headed to Springfield hoping for the best. We got there and everyone was so nice to us and we finally got another ultra sound that took forever. Both me and Bradley were going to sleep. Then the doctor, Dr. Dix came in and looked a little bit at the ultra sound and then we went in her office to talk with her.
So to make another long story short she told us that
1.Our babies intestines were growing outside of her body and would definitely need surgery and
2. That the left side of her brain was bigger than the right.
She gave some medical terms for all of this but she gave us so much info today I can't remember the terms used.
I was so confused and had no idea what she was even telling us so she had to explain it again a second time.
She told us if the baby has an extra chromosome 18 that there is no way we can save this baby. I will carry the baby possibly to full term knowing this baby wont live but maybe 1 day. She asked if this was the case would we want to abort the baby? I told her that is not an option for us.
Knowing that even if this baby lived for a second she would gain her body here on earth and that's all she needed.
She told us that they needed to do some testing on me and take fluid from inside the placenta to find out if the baby did have this extra chromosome. If the baby didn't have this extra chromosome we would have to deliver in St. Louis at a special hospital. Dr. Dix also told us this baby has a 1 in 3 chance of having this extra chromosome because of her enlarged brain.
So this is totally something new for our family and I never ever would have thought something like this would happen. It scary and sad and confusing all at the same time. I know if I didn't have the two kids I have this would be so much more challenging. I have come to appreciate them more over these past few days and realize just how special they are.
We find out in two weeks if this baby will live or not so in the mean time all I can do is pray and have faith everything will turn out.
So I'll end on a cute note:
Today Bradley took Payson with him to go and weld something and while they were driving Payson asked Bradley if the baby had come out yet? Bradley told him "no not yet, but when the baby does come the baby might not get to come home with us because she is really sick.
The baby might go back home and live with Heavenly Father."
Then Bradley asked, don't you think the baby would like that?
Payson said Yeah.
Then Bradley said Ya and then Jesus could hold our baby in his arms. Do you think the baby would like that?
Payson said Yeah. and then paused a little moment thinking and asked
"When is Jesus gonna hold me?"
Bradley just told Payons well hopefully not for a while buddy.
I love that, he is such a sweet little guy!!
2 years ago
20 comments:
Sheena, thanks so much for sharing this! You will be in my thoughts and prayers, and whatever happens I know you'll be ok because you know where to turn for comfort and peace. Love you, and hoping for the best!
You have such an amazing attitude about this! Can you imagine going through something like this without the gospel in your life?!?!
You and your sweet little one are in our prayers!
I am also amazed at how good Bradley did at explaining it to Payson...good daddy moment.
Sheena I am so sorry! My heart goes out to you! Keep hope! I have seen so many miracles in my own family as well as in others. I have a brother who has had 2 heart transplants...one when he was 10 weeks old and one when he was 7. Miracles DO happen. We saw it time and time again in Primary Children's Hospital. Those little babies are strong!
If you need me to watch your kids or anything else just let me know!You will be in our thoughts and prayers!
Sheena, I am friends with your sister Michelle and heard about your situation on her blog. I have taught special ed for years and currently teach it at BYU. Your story is very near and dear to my heart.
I am sitting here crying tears for you, a complete stranger. I just want you to know so many people stand by ready to support you, your baby and your family.
I kept thinking of this poem that I love as I read your story and felt impressed to share it with you. You can find it here: http://www.our-kids.org/Archives/Holland.html
I hope this brings you some comfort and direction. You will be in our family's prayers.
Many prayers are with you and your family. Heavenly Father's plan is one that can tug at every heart string and also bring us joy at the same time. Stay strong and know that you are all loved.
Are you aware that Ashley Pulley was also born with her intestines on the outside? Brad has probably told you that, though. She's a strong girl, and so are you! My thoughts and prayers are with your family!
Sheena. *hug* My thoughts and prayers are with you and your little family. Take comfort in the gospel and keep us updated. Love you!
Sheena...We are praying for you and your family. We love you. Call me. (480-772-1103)
Sheena I am hoping there is nothing wrong with the ventricles on her brain! We were told isaac had really big ventricles and it meant fluid build up on his brain. and it was either down syndrome or hydrocephalus. Turned out he has a big brain :)
We didn't have Isaac tested for the extra chromosome. . . but I do remember they look for marker 21, 13, or 18.
If it's hydrocephalus hopefully with shunts she will be okay, and with her other surgeries. . .
BUT no matter what happens she will be loved, and already is :)
Love you guys. Keep us updated!
I just reread and saw that you said they are looking for marker 18. . .
I did a lot of research on all of this when I was pregnant with isaac. .. so if you ever want to talk call me!
sheena its chelsea i just wanted to let u know that u and ur family are in our thoughts and prays and let u know we are here for you! your a wonderful mom and a very strong young women i wish i was there to give you a big hug! miss u tons and remember u are not alone and heavenly father us watching over u and ur baby!! luv ya miss ya
I am so sorry to hear about your baby. I carried my 2nd baby knowing he wouldn't survive but a few minutes after he was born. It was was hard, but also a good experience. I felt the Lord close by me. Let me know if you ever want to talk or anything. I talked with other ladies who had similar experiences and it helped me.
Your cousin,
Mindy (Flake) Sanders
Sheena, I just finished reading about your unborn baby while I was litterally bawling clear thru it. I'm so sorry you have to go thru this!! We are fasting for you on Sunday with the rest of the family & will keep you in our prayers! Just remember we love you so much & can't wait to see you in June when we come to visit! Love Aunt Malinda
We are thinking about you guys so much! You are strong to write all of that!! You are amazing and our prayers are with you! We hope the best for your sweet little girl. I wish we could be there with you guys during this hard time. We love you!
Sheena, I am sitting here bawling as I type this. I guess it's one of those fears all of us expectant mothers have. I am so sorry to hear that you have to worry and hurt. I don't really know what to say besides trust in Heavenly Father. He knows what He is doing. No matter what happens, He has your happiness in mind. Love you and know that you will have many people praying for you. Keep us all updated.
Sheena,
I most def didn't make it through that blog with out a tear in my eye. I want you two to know how much I love you guys. I am so grateful you have such wonderful friends and family and most of all father in heaven who is there to support you through. I know that no words will ever ever be able to help with any sadness or pain, but hey it's always nice to hear right!?!? I hope i get to see you soon, I miss you guys a lot and I love you!
Sheena,
You are amazing! You seem so strong and I know that the Lord will bless you! We will keep you in our thoughts and prayers
Sheena and Bradley, I am so sorry to hear about your sweet little baby...You and Bradley have such a sweet attitude. We love you guys. Your family will be in our prayers...Love Aunt Debbie
Sheena we're praying for you. Heavenly Father knows what your going through and can comfort you through this trial. I know that it is times like this that we can draw closest to our Heavenly Father and grow spiritually.
Sheena, I am amazed at the spiritual courage you are exercising during this time. You are such a strong person. I know the Lord will bless you and the baby, and help you find peace in whatever He has in store for you. Our prayers are continually with you. I love you Sheena!!
Oh friend. All I can say is that I am thinking and praying for you and your family. Thank you for your sweet example.
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